Zebra leaning on zebra

Though I am no medical expert in any way, shape, or form, here are some sites, support groups, articles, and so on that helped me to learn a little more about Ehlers-Danlos Syndrome and how to best take care of myself. I’ll keep adding to this list over time.

Please, be sure to do lots of research before deciding if you think you have Ehlers-Danlos Syndrome (EDS) or a Hypermobility Spectrum Disorder (HSD)—find a medical professional you trust when seeking a diagnosis and advocating for yourself. Do not take medication before getting an official diagnosis or approval from a prescribing medical professional.

Ehlers-Danlos Syndrome Resources and Support Groups

    The Ehlers-Danlos Society's Logo

    The Mighty's Logo

    Inspire's Logo

Ehlers-Danlos Syndrome Facebook Groups

Ehlers-Danlos Syndrome Helpful Blog Posts


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