Those of us with chronic ailments, emotional ups and downs, and consistent pain could really use a self-care kit filled with all the things to make the tough times a little better. I'm working on my own self-care kit and list of awesome helpful items, but in the meantime, I really like the one that Juliette Virzi shared on The Mighty below. What will you add to your self-care kit? Mine will definitely include stuffed animals (particularly ones that can heat up), my heated blanket, and my TENS machine to name a few. Get some ideas for your self-care kit below! Amy's Note: I have made some additions and slight changes to the list below as well—but kept the Mighty's item suggestions.
October is Dysautonomia Awareness Month, so in honor of the month—and to help spread awareness about dysautonomia—I am sharing the post below from The Mighty. There are many different types of dysautonomia—according to Dysautonomia International: Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous... Continue Reading →
The video above is a short video that shares a little more insight into the Ehlers-Danlos Syndromes and how they are so often undiagnosed for many years. The results are staggering—so many individuals wait decades before they get the proper diagnosis. Please feel free to share this widely—I want to spread the word as much... Continue Reading →
Time for the Karaoke Song of the Week How-To! DIFFICULTY LEVEL: HARD I haven't been feeling top-notch lately, so I missed the Karaoke Song of the Week on Friday this week, and altogether last week...but, as I am reminded by this quote... I'm going to say "plot twist!" and give you our Karaoke Song of the Week today: Sia's Chandelier. I love Sia's rich and haunting voice: and she has so many moving and powerful songs. This one is not her mort "powerful" song, but is probably the one you know best by her--a good intro for any Sia newbies. I'll be sure to share some more of her videos and lyrics for karaoke how-to's in the future. Here is the original music video for Chandelier: your karaoke tune of the week:
Michigan cat parents, Lauren and Will have two fur-babies that have each achieved World Records: Arcturus, the tallest pet cat in the world, and Cygnus, the pet cat with the longest tail in the world! You can read the story below from the UK paper, The Telegraph "Gigantic feline with ridiculously long legs is the... Continue Reading →
Today is World Arthritis Day, so I wanted to be sure to post something about it to bring attention to arthritis, how to get a proper diagnosis, and what you can do if you or a loved one has arthritis.
I have definitely been in the situation before where I worry what people will say or how they will act when they see that I have a disability placard—and “don’t look sick.” I don’t need it every day, but when I do have bad pain days, I can tell you it’s been a life-saver.
I hope that more people, like these officers, realize that there are plenty of us out there with invisible disabilities/illnesses, and we are not all trying to “game” the system.
The blog post below comes from a fellow POTSie who also needs a disability placard—even though she doesn’t “look” like it.
One thing every single young chronically ill person will tell you about is the incredibly frustrating battle that comes with having an invisible illness. We are constantly trying to regain normalcy in our lives, but also have to roll with the punches through the symptoms our illness brings along for the ride. For example, I can’t do many of my favorite activities anymore — let alone even just be outdoors in crazy heat — however, I don’t like being different and asking for help, even when I need it.
Today I went to my alma mater to run a quick errand. I wasn’t feeling particularly great, but I told myself that it would only take five minutes and to suck it up and get it over with. I mapped everything out in my head and went to my usual parking space. It’s one of two handicapped visitors spaces, both of…
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Yesterday Las Vegas was hit by a horrible tragedy: the worst mass shooting in U.S. history. I am at a loss for words and in disbelief. My whole heart goes out and aches for those who lost loved ones, were injured, or traumatized from the shooting. Take this time to take care of yourself, but if you're looking for ways to help people in Vegas, below is a list of ways to help. I personally can't donate blood, but I know I can help in other ways.
I love the view from work...it is so beautiful, calming, and healing. Wishing you all a very good, pain-free, happy day!
What a great description! Life didn't go as planned for me—and I know many others are in the same boat...but the goal is to accept it, and know it's okay. Each day is different and I never know how I will feel from minute-to-minute, but I know my body is working hard for me and... Continue Reading →
Xeli (pronounced Zeelee) has joined the Denver International Airport's CATS team--which believe it or not has only had dogs until this point. That's because CATS stands for Canine Airport Therapy Squad...well move over dogs, because here comes your first therapy cat!
My friend Stella is the most awesome octopus! I'm lucky to work with her. She loves to swim and dance...hope you all have a happy, pain-free/low-pain weekend!
It's that time of the week: Friday's Karaoke Song of the Week How-To! This week, I chose a song that is another favorite of mine (yes, I have a lot of favorite songs), but is actually at a low range that is a bit tough for me to sing: "Feeling Good" by Michael Bublé! I love Mr. Bublé's voice—it just sounds as smooth as butter to me. This song in particular is my favorite of his: filled with a wide vocal range, with an awesome musical ensemble.
Today, I'm sending some extra love and support to my wife, Amanda. I know this has a been a tough and stressful week for her—just want you to know, love, that you're not alone! I'll be there for you and help you out through it all. I love you always and forever.
Today is a bad pain day—I'm "low on spoons" now, but not low on hope, at least. I wanted to spread the word a bit about what EDS pain is—the typical pain that people with hypermobility-type Ehlers-Danlos Syndrome (hEDS) feel on a daily basis. This article did such a good job explaining the pain, I... Continue Reading →
I have to learn how to sit with "negative" feelings. Sometimes I will catch myself not only feeling emotions such as pain (physical or emotional), stress, anxiety, sadness, anger, frustration, etc., but also feeling guilt, anger, or some other negative feeling for feeling those things...I think this comes from being a perfectionist (fear of failure),... Continue Reading →
Time for some fun cat news! Who could resist these adorable little furballs? This fun moment is from Laura Caseley's blog Little Things. "Cat Owner Buys A Brand-New Foot Warmer, Then Sees 4 Little Paws Sticking Out by LAURA CASELEY Little Things blog If you have a cat, you’re probably familiar with the peculiar feline... Continue Reading →
This afternoon has been rough emotionally for me, and not because of any one thing or situation in particular. Premenstrual Dysphoric Disorder (PMDD) wreaks havoc on my brain at least once a month—what should be a few days before my period starts....The article below from XOJane gives some advice I found really helpful today. I wanted to share with anyone who might also be dealing with PMDD or know someone who is.
I wanted to punch this blog up with some more fun—and some more of my personality! Since I LOVE karaoke, I decided to make a weekly how-to post called "Friday's Karaoke Song of the Week!" Why Friday? Well TGIF, of course—the weekend means more chances for karaoke, whether that is out at a karaoke club, a bar, or at your house (with or without karaoke machine). This week I have chosen one of my all-time favorite karaoke songs to sing: Bohemian Rhapsody by my absolute favorite band Queen.
Have you noticed that in America, we don't really seem to care about the answer to "How are you?," and will usually answer with "fine" even if this isn't true? This is another article from Shinetext.com about feelings and expressing ourselves in a healthy way. If we define our feelings and talk about them, we can learn how to work through them and feel better overall. Hope this article helps some of you!
To try to continue to help with suicide prevention for September's Suicide Prevention Month, I wanted to share the following article from The Mighty. It is filled with hope and inspiration for anyone who is dealing with a disability and thoughts of suicide. Unfortunately, the suicide rate is much higher in people with disabilities than... Continue Reading →
I need to be a better listener: due to my ADD, I have a hard time stopping myself from speaking when it's not my turn. I also could learn to speak up better and be a clearer communicator. Having better communication is one of my biggest goals—and one thing I struggle with a LOT. This article from Shinetext.com gives some pointers on how we can each be a better speaker and a better listener.
I love technological advances—and I think robots are the way of the future. This article from Good Health is very interesting, and discusses how robots could actually be potentially better at diagnosing health issues than their human counterparts. This isn't to say that human doctors should be replaced—that human contact will probably always be needed—but... Continue Reading →