From The Mighty: “25 Things to Put in Your Self-Care Kit” (With Additions By Amy!)

Those of us with chronic ailments, emotional ups and downs, and consistent pain could really use a self-care kit filled with all the things to make the tough times a little better. I'm working on my own self-care kit and list of awesome helpful items, but in the meantime, I really like the one that Juliette Virzi shared on The Mighty below. sign for 25 things to put in your self-care kit What will you add to your self-care kit? Mine will definitely include stuffed animals (particularly ones that can heat up), my heated blanket, and my TENS machine to name a few. Get some ideas for your self-care kit below! Amy's Note: I have made some additions and slight changes to the list below as well—but kept the Mighty's item suggestions.

From The Mighty: “21 Signs You May Have Dysautonomia”

October is Dysautonomia Awareness Month, so in honor of the month—and to help spread awareness about dysautonomia—I am sharing the post below from The Mighty. There are many different types of dysautonomia—according to Dysautonomia International: Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous... Continue Reading →

#ItsOurTime

The video above is a short video that shares a little more insight into the Ehlers-Danlos Syndromes and how they are so often undiagnosed for many years. The results are staggering—so many individuals wait decades before they get the proper diagnosis. Please feel free to share this widely—I want to spread the word as much... Continue Reading →

Karaoke Song of the Week! “Chandelier” By Sia

Time for the Karaoke Song of the Week How-To! DIFFICULTY LEVEL: HARD I haven't been feeling top-notch lately, so I missed the Karaoke Song of the Week on Friday this week, and altogether last week...but, as I am reminded by this quote... Plot twist! quote I'm going to say "plot twist!" and give you our Karaoke Song of the Week today: Sia's Chandelier. I love Sia's rich and haunting voice: and she has so many moving and powerful songs. This one is not her mort "powerful" song, but is probably the one you know best by her--a good intro for any Sia newbies. I'll be sure to share some more of her videos and lyrics for karaoke how-to's in the future. Here is the original music video for Chandelier: your karaoke tune of the week:

I know, I know...you might be thinking "Chandelier? Really? Isn't that a bit tricky to sing? How do I even reach those notes?" Well, I felt the same way until I did watch this video from the lovely "Voice Finder" Fel:
I really appreciate Fel's video, because she breaks it down into how Sia pronounces the lyrics, what she does with her voice to get it from deep to high (hint: she goes from chest voice to head voice--the video above shows you a bit on how).

Caturday Mews: Arcturus and Cygnus– Two World Record-Breaking Cats from One Family

Michigan cat parents, Lauren and Will have two fur-babies that have each achieved World Records: Arcturus, the tallest pet cat in the world, and Cygnus, the pet cat with the longest tail in the world! You can read the story below from the UK paper, The Telegraph "Gigantic feline with ridiculously long legs is the... Continue Reading →

Handicapped? Really?

I have definitely been in the situation before where I worry what people will say or how they will act when they see that I have a disability placard—and “don’t look sick.” I don’t need it every day, but when I do have bad pain days, I can tell you it’s been a life-saver.

I hope that more people, like these officers, realize that there are plenty of us out there with invisible disabilities/illnesses, and we are not all trying to “game” the system.

The blog post below comes from a fellow POTSie who also needs a disability placard—even though she doesn’t “look” like it.

Krista Lauren

One thing every single young chronically ill person will tell you about is the incredibly frustrating battle that comes with having an invisible illness. We are constantly trying to regain normalcy in our lives, but also have to roll with the punches through the symptoms our illness brings along for the ride. For example, I can’t do many of my favorite activities anymore — let alone even just be outdoors in crazy heat — however, I don’t like being different and asking for help, even when I need it.

Today I went to my alma mater to run a quick errand. I wasn’t feeling particularly great, but I told myself that it would only take five minutes and to suck it up and get it over with. I mapped everything out in my head and went to my usual parking space. It’s one of two handicapped visitors spaces, both of…

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“Feeling Hopeless? Here Are 5 Ways to Help After the Las Vegas Tragedy”—From The Mighty

Yesterday Las Vegas was hit by a horrible tragedy: the worst mass shooting in U.S. history. I am at a loss for words and in disbelief. My whole heart goes out and aches for those who lost loved ones, were injured, or traumatized from the shooting. Take this time to take care of yourself, but if you're looking for ways to help people in Vegas, below is a list of ways to help. I personally can't donate blood, but I know I can help in other ways.

Friday’s Karaoke Song of the Week! “Feeling Good” By Michael Bublé

It's that time of the week: Friday's Karaoke Song of the Week How-To! This week, I chose a song that is another favorite of mine (yes, I have a lot of favorite songs), but is actually at a low range that is a bit tough for me to sing: "Feeling Good" by Michael Bublé! I love Mr. Bublé's voice—it just sounds as smooth as butter to me. This song in particular is my favorite of his: filled with a wide vocal range, with an awesome musical ensemble.

“2 Types of Pain Ehlers-Danlos Syndrome Causes on a Daily Basis”

Today is a bad pain day—I'm "low on spoons" now, but not low on hope, at least. I wanted to spread the word a bit about what EDS pain is—the typical pain that people with hypermobility-type Ehlers-Danlos Syndrome (hEDS) feel on a daily basis. This article did such a good job explaining the pain, I... Continue Reading →

“Fighting Our Negative Emotions Does More Harm Than Good” by Anna Meyer from Shine

I have to learn how to sit with "negative" feelings. Sometimes I will catch myself not only feeling emotions such as pain (physical or emotional), stress, anxiety, sadness, anger, frustration, etc., but also feeling guilt, anger, or some other negative feeling for feeling those things...I think this comes from being a perfectionist (fear of failure),... Continue Reading →

“Cat Owner Buys A Brand-New Foot Warmer, Then Sees 4 Little Paws Sticking Out” by Laura Caseley

Time for some fun cat news! Who could resist these adorable little furballs? This fun moment is from Laura Caseley's blog Little Things. "Cat Owner Buys A Brand-New Foot Warmer, Then Sees 4 Little Paws Sticking Out by LAURA CASELEY Little Things blog If you have a cat, you’re probably familiar with the peculiar feline... Continue Reading →

How One Woman Deals With Premenstrual Dysphoric Disorder (PMDD)

This afternoon has been rough emotionally for me, and not because of any one thing or situation in particular. Premenstrual Dysphoric Disorder (PMDD) wreaks havoc on my brain at least once a month—what should be a few days before my period starts....The article below from XOJane gives some advice I found really helpful today. I wanted to share with anyone who might also be dealing with PMDD or know someone who is.

Friday’s Karaoke Song of the Week! “Bohemian Rhapsody” by Queen

I wanted to punch this blog up with some more fun—and some more of my personality! Since I LOVE karaoke, I decided to make a weekly how-to post called "Friday's Karaoke Song of the Week!" Why Friday? Well TGIF, of course—the weekend means more chances for karaoke, whether that is out at a karaoke club, a bar, or at your house (with or without karaoke machine). This week I have chosen one of my all-time favorite karaoke songs to sing: Bohemian Rhapsody by my absolute favorite band Queen.

“Want to Feel Better? Say Exactly How You’re Feeling” by Anna Meyer

Have you noticed that in America, we don't really seem to care about the answer to "How are you?," and will usually answer with "fine" even if this isn't true? This is another article from Shinetext.com about feelings and expressing ourselves in a healthy way. If we define our feelings and talk about them, we can learn how to work through them and feel better overall. Hope this article helps some of you!

From The Mighty: “18 Messages of Hope From People With Disabilities Who’ve Struggled With Suicidal Thoughts”

To try to continue to help with suicide prevention for September's Suicide Prevention Month, I wanted to share the following article from The Mighty. It is filled with hope and inspiration for anyone who is dealing with a disability and thoughts of suicide. Unfortunately, the suicide rate is much higher in people with disabilities than... Continue Reading →

“10 Ways to Be a Better Speaker and Listener” by Nido Qubein

I need to be a better listener: due to my ADD, I have a hard time stopping myself from speaking when it's not my turn. I also could learn to speak up better and be a clearer communicator. Having better communication is one of my biggest goals—and one thing I struggle with a LOT. This article from Shinetext.com gives some pointers on how we can each be a better speaker and a better listener.

“Paging Dr. AI”—From GOOD HEALTH

I love technological advances—and I think robots are the way of the future. This article from Good Health is very interesting, and discusses how robots could actually be potentially better at diagnosing health issues than their human counterparts. This isn't to say that human doctors should be replaced—that human contact will probably always be needed—but... Continue Reading →

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