I'm a little late in posting this, but bare with me—just getting over being sick! I liked this (11/7) prompt better than today's (11/9) prompt, so here we go... New post for the My Mighty Month November Gratitude Challenge! The November 7th prompt is: November 7: Select three things that happened this year that you... Continue Reading →
After years of strange symptoms, mounting chronic pain and fatigue that have especially worsened over the past months, lots of doctors, even more tests and treatments, and lots of exhaustion, I was finally diagnosed with Hypermobility Ehlers-Danlos Syndrome (EDS) earlier this month. And let me tell you...it was an adventure getting to that point. I... Continue Reading →
I haven't blogged in a while, but life has become so surreal, it has been hard to find the chance to do so. Sometimes I let my mind wander...and I think that life has gotten so crazy, I must be in a coma—or perhaps fell into some alternate almost-identical universe. Maybe that's why I feel... Continue Reading →
My wife asked me what I want for Christmas/Hanukkah (we celebrate both, so it turns into Chrismakkuh at our house), and I had trouble (as I often do) thinking about what I want...until I came across an amazing cat hoodie that isn't only cat-themed in design: but it can hold a cat in its pouch... Continue Reading →
The scale of 0 to 10 isn't really accurate for severe chronic pain...so I found this one for y'all instead. I didn't know until I was an adult that a lot of people feel "0-3" on an average day--I thought everyone felt some pain to lots of pain daily. This pain scale shows more accurately... Continue Reading →
Time for some fun Caturday Mews! This one comes all the way from Japan and is purrrrfect for this week: cat-shaped soy sauce art! I may be biased because of my love for cats, but I agree with the author of the article below: these are way better than latte art. I think I'm going... Continue Reading →
I love technology—especially when it helps with accessibility. This article from The Mighty explains more about the positives of self-driving cars, and how they can help people with disabilities. Hope you enjoy the post! [H/T: The Mighty] "How Self-Driving Cars Could Transform Travel for People With Disabilities By Karin Willison Staff at The Mighty Disability... Continue Reading →
I am just finally getting over a killer cold—after missing work last week for stomach issues...and I wanted to find out how others deal with being sick while also having Ehlers-Danlos Syndrome, and I found the article below. I have been having a miserable time with this cold...and perhaps my faulty collagen isn't helping, but... Continue Reading →
I'm a little late to post The Mighty's Mighty Month Challenge's Newsletter for Week 2 (you can subscribe to their newsletter here) of November's gratitude challenge. Below is the 2nd newsletter I received for this month explaining prompts for this week and providing the explaining article again. I've decided that to actually not blog about... Continue Reading →
Second post for the My Mighty Month November Gratitude Challenge! The Second prompt is: November 2: Name three people who have improved your life in a meaningful way. Three people (though there are more) who have improved my life in a meaningful way are: My wife: Amanda is my light, companion, has been there through... Continue Reading →
First post for the My Mighty Month November Gratitude Challenge! The First prompt is: November 1: Select three things that happened in October that you are grateful for. For October, I was thankful for: The warm weather we had last week The fact that I got to spend special time with some of my most... Continue Reading →
I subscribed to The Mighty's Mighty Month Challenge (you can subscribe too here): November's challenge is all about gratitude, which I love! I want to be sure to be thankful each day for the positive people, animals, and things in my life, so I thought this would be a perfect challenge for me! I know it's going to be tough to remember to do this daily, but I'm going to do my best—and if I don't write them out, I want to be sure to still reflect. Here is the email I received for this month explaining prompts for the week and providing the explaining article. Let me know what you're grateful for in comments below!
MY MIGHTY MONTH
It’s November! That means time for a new My Mighty Month challenge. For those joining us from the U.S., this month’s challenge comes just in time for Thanksgiving. This month, we’re asking you to spend 30 days practicing gratitude. As part of the challenge, you should write down at least three things per day that you are grateful for...
Usually I could care less about American football, but when I found this video, I couldn't get enough of it: on Thursday, October 26, 2017's Ravens-Dolphins NFL game, a cat took to the field! I love that not only did they capture the kitty on video, but they caught kitty on slow-mo and included commentary from Tony Romo: like the cat was one of the athletes (which we know cats are). Hey, maybe kitty wanted to join the game? You can see the kitty's beautiful running form captured live on TV--and now shared across YouTube! Watch the video here:
Ahhhh October...fall is here, winds are low, Halloween is near...all the delicious candy (that really, I shouldn't be eating) is on sale—and it's the month that I proposed to my wife! October is one of my favorite months. Here in Santa Cruz County, October is typically one of the mildest, nicest months of the year.... Continue Reading →
Those of us with chronic ailments, emotional ups and downs, and consistent pain could really use a self-care kit filled with all the things to make the tough times a little better. I'm working on my own self-care kit and list of awesome helpful items, but in the meantime, I really like the one that Juliette Virzi shared on The Mighty below. What will you add to your self-care kit? Mine will definitely include stuffed animals (particularly ones that can heat up), my heated blanket, and my TENS machine to name a few. Get some ideas for your self-care kit below! Amy's Note: I have made some additions and slight changes to the list below as well—but kept the Mighty's item suggestions.
October is Dysautonomia Awareness Month, so in honor of the month—and to help spread awareness about dysautonomia—I am sharing the post below from The Mighty. There are many different types of dysautonomia—according to Dysautonomia International: Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous... Continue Reading →
The video above is a short video that shares a little more insight into the Ehlers-Danlos Syndromes and how they are so often undiagnosed for many years. The results are staggering—so many individuals wait decades before they get the proper diagnosis. Please feel free to share this widely—I want to spread the word as much... Continue Reading →
Time for the Karaoke Song of the Week How-To! DIFFICULTY LEVEL: HARD I haven't been feeling top-notch lately, so I missed the Karaoke Song of the Week on Friday this week, and altogether last week...but, as I am reminded by this quote... I'm going to say "plot twist!" and give you our Karaoke Song of the Week today: Sia's Chandelier. I love Sia's rich and haunting voice: and she has so many moving and powerful songs. This one is not her mort "powerful" song, but is probably the one you know best by her--a good intro for any Sia newbies. I'll be sure to share some more of her videos and lyrics for karaoke how-to's in the future. Here is the original music video for Chandelier: your karaoke tune of the week:
Michigan cat parents, Lauren and Will have two fur-babies that have each achieved World Records: Arcturus, the tallest pet cat in the world, and Cygnus, the pet cat with the longest tail in the world! You can read the story below from the UK paper, The Telegraph "Gigantic feline with ridiculously long legs is the... Continue Reading →
Today is World Arthritis Day, so I wanted to be sure to post something about it to bring attention to arthritis, how to get a proper diagnosis, and what you can do if you or a loved one has arthritis.
I have definitely been in the situation before where I worry what people will say or how they will act when they see that I have a disability placard—and “don’t look sick.” I don’t need it every day, but when I do have bad pain days, I can tell you it’s been a life-saver.
I hope that more people, like these officers, realize that there are plenty of us out there with invisible disabilities/illnesses, and we are not all trying to “game” the system.
The blog post below comes from a fellow POTSie who also needs a disability placard—even though she doesn’t “look” like it.
One thing every single young chronically ill person will tell you about is the incredibly frustrating battle that comes with having an invisible illness. We are constantly trying to regain normalcy in our lives, but also have to roll with the punches through the symptoms our illness brings along for the ride. For example, I can’t do many of my favorite activities anymore — let alone even just be outdoors in crazy heat — however, I don’t like being different and asking for help, even when I need it.
Today I went to my alma mater to run a quick errand. I wasn’t feeling particularly great, but I told myself that it would only take five minutes and to suck it up and get it over with. I mapped everything out in my head and went to my usual parking space. It’s one of two handicapped visitors spaces, both of…
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Yesterday Las Vegas was hit by a horrible tragedy: the worst mass shooting in U.S. history. I am at a loss for words and in disbelief. My whole heart goes out and aches for those who lost loved ones, were injured, or traumatized from the shooting. Take this time to take care of yourself, but if you're looking for ways to help people in Vegas, below is a list of ways to help. I personally can't donate blood, but I know I can help in other ways.